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Patient Voices

Son in a wheelchair walking down a sidewalk past a stop sign with his mom/caregiver
Patient Voices
Finding Joy in the Journey: David and Melissa’s Life with Alexander disease (AxD)
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Man in a baseball cap and glasses looking up and to the right
Patient Voices
The Misunderstood Realities of Living with Very High Triglycerides
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Woman standing wtih her hands behind her back in a mechanics garage
Patient Voices
Living with an Invisible Illness: Yajaira’s Journey with Severe Hypertriglyceridemia (sHTG)
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Headshot of Charles, Cardiologist
Patient Voices
From Treating ATTR-CM to Living with It: A Conversation with a Cardiologist
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Two small children posing for a photo
Patient Voices
Behind the Mystery of Angelman Syndrome: A Journey of Resilience and Strength
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Rick and his wife Kim walking horses down a rural road
Patient Voices
Meet Rick: Navigating Life with Familial Chylomicronemia Syndrome (FCS)
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