newsroom

Patient Voices

Son in a wheelchair walking down a sidewalk past a stop sign with his mom/caregiver
Patient Voices
Finding Joy in the Journey: David and Melissa’s Life with Alexander disease (AxD)
Read this article
Man wearing a hat and glasses looking up to the right standing in front of a building
Patient Voices
The Misunderstood Realities of Living with Very High Triglycerides
Read this article
Woman standing wtih her hands behind her back in a mechanics garage
Patient Voices
Living with an Invisible Illness: Yajaira’s Journey with Severe Hypertriglyceridemia (sHTG)
Read this article
Headshot of Charles, Cardiologist
Patient Voices
From Treating ATTR-CM to Living with It: A Conversation with a Cardiologist
Read this article
Two small children posing for a photo
Patient Voices
Behind the Mystery of Angelman Syndrome: A Journey of Resilience and Strength
Read this article
Rick and his wife Kim walking horses down a rural road
Patient Voices
Meet Rick: Navigating Life with Familial Chylomicronemia Syndrome (FCS)
Read this article